A lupus survivor's cerebrations on living day to day...

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    Showing posts with label Update. Show all posts
    Showing posts with label Update. Show all posts

    Finally got report on neuropsychiatric test.!

    Besides the obstacle of my carpel tunnel flaring up I have been extremely busy. it took a couple of months for them to correct my Social Security benefits and just now get jurisdiction for child support enforcement moved from Michigan to Tennessee so that I can pursue my sons dad for back child-support and hopefully eventually a modification. Just when I thought I had found his current address he has changed jobs again. without child-support and the missing 2 months of Social Security benefits I ended up losing my phone service with BellSouth. Luckily with a deposit I was able to get Comcast for phone and Internet services it actually will be cheaper. I was hurt to have to give up a phone number that I had had for over a decade but I'm thankful to be able to communicate. I was also facing utility cut off but an angel appeared in the form of an old classmate that I hadn't spoken to for 25 years. upon hearing my circumstance he immediately paid off my $500 balance. Otherwise I have some very good news. That I couldn't wait to tell you about. I've finally finished my weeks of neuropsychiatric testing and got a final report. his report was very detailed giving much more information than just establishing an attention deficit. But the main point is that I do have a serious attention deficit and problems with concentration primarily caused by the areas of the brain that involve processing thought. Basically the intellectual or IQ and verbal areas are still very high. 96 percentile. Superior even. but the performance areas which include thought-.processing was very low well like 25 percentile. The 2 main areas that are given me trouble are working memory and auditory processing. That explains why I can keep track of things or hold very much information at one time. For instance I can never hold a full phone number long enough to dial it. And because of the auditory processing problems that I often have difficulty comprehending what others are saying in conversations especially business phone calls. I could go on and on with the deficits that I've that. I just feel so much better having them acknowledged and documented. the neuropsychiatrist I've been seeing specializes in neural feedback that is an Alternative to drug therapies. Unfortunately I would still have a co-pay of $22 per session and I would need to go at least once a week in order to be effective. my current financial situation won't allow me to do this right now. I'm waiting for the results to be forwarded to my neurologist and then I will see what he has to say. Hopefully these results will at least give me something to use to show my vocational rehabilitation counselor in order to get some accommodations if I can ever get it together enough to go back to school to complete my Web development diploma program. I have 3 classes to go but maybe they will allow me to just take one class at a time instead of full time.

    Prayers Answered! Start Neuropsyche Testing Right Away!

    I continued to have a diminished neurological status the past week. Normally, i wouldn't go out especially not alone with such impaired thinking, but i didn't want to miss discussing neuropsychiatrist with my psychologist who'd been away on vacation. As storm loomed, I started morning off with fibromyalgia pain and nausea. The matAplus bus went about 30 miles in opposite side of town before getting me to my appointment half hour late. My neurology became so impaired i got lost in hall before getting to correct door to waiting room. Luckily my walker kept me from falling over as seizure descended on me just as i approached the receptionist counter. They recognized me and responded remarkably well. In minutes, I was being calmed by my doctor in her office. Once i was able to communicate she assessed all the problems that had contributed to my overload. She contacted an attorney for some advice. They informed me of nonprofit community legal assistance. She even went through the trouble of getting releases faxed etc. in order to talk directly to the neuropsychiatrist on my behalf to make sure i understood everything involved. She helped me outline a brief plan action for solving some problems in my personal business. She also helped me with script for discussing the insurance and fees for neuropsychiatric evaluation. Having such guidance relieved a great deal of my anxiety. Feeling more confident i called the neuropsychiatrist office the next day to discuss costs. I ended up talking with doctor directly. He was extremely cooperative, willing to bill medicare and allow me to work out any balance afterwards. He seemed genuinely excited about starting, saying to me "its gonna be like searching for clues to solve a mystery" I start next week, tuesday & thursdays for 8 sessions of neuropsychiatric testing!! Prayers answered! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Special Thanks! to everyone that emailed me prayers and scripture that got me through this difficult week!

    Blessed & Busy: Ordered steps lead to "Lupus Survivor Stories Blidget"

    ive been stretched so far the past weeks. but thank god to be exhausted from actually accomplishing something as opposed to just being tired and weary from pain and worry. altho many of my health and financial problems still exist for once i have some promising things in the works. i can feel the physical benefits of pt. my first week of neuropsych tests went well. my med couselor found some potentially free or reduced legal aid. your prayers for me are coming to fruition. sorry i didnt follow up on my "spread the word" campaign last week. i barely found time for much between daily healthcare appts. my myspace blog has my most all day to day updates/journal ...too difficult to put updates on all the social networks i belong these days. i had such wonderful results recruiting new friends on myspace and facebook. reading so many inspiring stories led me to decide to collect them for lupus awareness. i developed a blidget or blogging widget called "Lupus Survivor's Stories" to highlight the life-threatening aspect of lupus. i know many of you have lupus or know someone who has had their life threatened by lupus...or maybe even lost a loved one. im including the request ive made on myspace and facebook, hoping some fellow lpus survivors will take time to share their stories. even when im too tired to post, i try to to surf thru and see what my friends are upto. be assured you all are apart of my daily prayers. angie The steps of a good man [woman] are ordered by the LORD: and he delighteth in his way! Psalm 37:23 (KJV)

     

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