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Posted by Musings of a Lupus Survivor! Thursday, June 11, 2009 at 1:32 PM 0 comments Links to this post
Posted by Musings of a Lupus Survivor! Tuesday, February 3, 2009 at 10:06 AM 2 comments Labels: blog, chronic illness, family, IBS, lupus, neurological, rant Links to this post
Posted by Musings of a Lupus Survivor! Saturday, January 3, 2009 at 11:55 PM 0 comments Labels: hobby, memories, pictures, sleep, therapy Links to this post
Posted by Musings of a Lupus Survivor! Wednesday, December 31, 2008 at 3:03 AM 0 comments Labels: holiday, memories, pictures Links to this post
Posted by Musings of a Lupus Survivor! Sunday, December 28, 2008 at 3:25 AM 0 comments Labels: holiday, lupus, memories, pictures Links to this post
The best way to define the Christmas experience with my family is a time line of eating, drinking, and being merry.
Sunday, December 21, Pop arrives at my house with a silver flask of Conquito just for me. He also brought some of thick slices of ham he baked himself ...with Dijon mustard.
Monday, December 22, after shopping, Pop's insist I experience Sonic's Hazelnut Iced Coffee to go with our sandwiches.
Tuesday, December 23, We make the two hour trip to my aunts. As soon as I arrive, I'm offered homemade egg nog which I put on hold to eat a light dinner first... green beans, macaroni and cheese and ham! Then she begins to reveal the contents of all the pretty Christmas tins decorating the counter and bar:
*exquisite elegant dark chocolate covered Bourbon Balls she made herself
*gold foiled wrapped Ferrero Rocher hazelnut candies
*milk chocolate and white chocolate covered pretzels
*sugar cookies
Especially nice for me were all the treats reminiscent of my childhood:
*pink, yellow, white and chocolate brown coconut hand-dipped Bon Bons
*assorted old fashioned hard candies
*peppermints
*the classic assortment of nuts: pecans,walnuts,chestnuts, n!$$@ toes
*oranges and apples
While everyone else was out shopping til late, my aunt and I got comfortable in our PJs, enjoyed watching movie and talking while sipping her special recipe of tea flavored with orange cinniman, ginger and other spices with a touch dark Bacardi rum. I indulged in one Bourbon Ball before bed.
Wednesday, December 24, Christmas Eve Morning, my aunt prepared the family for the day with Scrambled Eggs, Bacon, Toast and her homemade Strawberry Butter. I never had anything like it. My cousin brought Bailey's Carmel to top off our coffee. This led to the first of my much needed deep naps. When I awoke everyone was out on errands, so I passed the time on the internet, sampling the Christmas treats and staying warm with more spiced tea After everyone came home for the night we ordered Pepperoni Pizzas, my health conscious cousin made a great salad with a variety of greens, sprinkled with almonds, mango flavored pineapple chips, and French dressing...washed down with a glass of White Zinfandel supplied by Pops. The children were allowed to open one gift apiece at midnight. We played a couple of rounds of their new games then hit the sack.
Thursday, December 25, Christmas Day! Of course the children were knocking on doors getting everyone up Christmas morning. After the final exchanging of gifts, my Aunt prepared a grand Christmas brunch with Scrambled Eggs, Bacon, Ham, Country Fried Potatoes, Fruit, and French Toast topped with Strawberries and Whipped Cream! The sheer number of calories ingested at once put me in a catatonic state. I fell asleep in the big chair while the kids tested out the Wii. I awoke from the nap induced by Christmas breakfast to the aroma of Christmas dinner.
My cousin prepared the most tender juicy turkey I'd ever had. I believe the secret was a beer marinade. Of course this was accompanied by traditional cornbread dressing and giblet gravy and the marshmallow topped sweet potato casserole...and a glazed ham! There was lime gelatin salad...but I don't do green stuff. The highlight of my holiday feasting is my step dad's Hot Water Cornbread served with his turnips and greens. Recipes inherited from his mother. I like to wait by him at the stove to take mine straight out the popping hot grease of the skillet to my plate. This year I decided to be adventurous and try...'chitlins'. I put about a tablespoon on the corner of my plate with a whole lot of Louisiana hot sauce. I managed to chew and swallow the first bite but decided that the peculiar aftertaste that developed once the heat left was just not something I desired. I went back for more Hot Water Cornbread to sop up the pot liquor from the greens, then I found myself running out greens and turnips to go with the Hot Water Cornbread, so I'd get a little more of them. It was a never ending cycle into gluttony. I vaguely remember washing down the last plate with a glass of Beringers. I never made it to desert. No problem, my Aunt packed generous portions of Coconut Cake, Caramel Raisin Spice Cake, Butterscotch Cream Pie and Ambrosia to indulge once we got back home.
Friday, December 26, In the morning before packing for trip home, we experienced a encore of Christmas Brunch. After another nap we headed down the interstate home. Suddenly, we're detouring down the highway and pulling up to a mom and pop store. My step dad wants us to try some of the Pork Pulled Meat Barbecue he was telling us about....and the Potato Salad! So that's my family's holiday story...eat, drink, sleep, eat some more and be merry!
Posted by Musings of a Lupus Survivor! Friday, December 26, 2008 at 1:41 AM 0 comments Labels: family, good news, holiday, memories Links to this post
Posted by Musings of a Lupus Survivor! Tuesday, December 23, 2008 at 3:31 AM 0 comments Labels: family, giving, holiday Links to this post
Posted by Musings of a Lupus Survivor! at 2:49 AM 0 comments Labels: family, good news, holiday, love, memories, pictures Links to this post
My holiday weekend began with very little cheer. My son barely made it through exams Thursday with a terrible cold that developed into bronchitis by Friday. For the week, I'd brought a pain spell on myself by forgetting a morpheme patch change. Then there was IBS & UTI to add misery. As if that wasn't enough, toilet tissue was scarce. I'd made myself content with having no funds for Christmas gifts. I was going to be happy with just 'love'. Friday I discovered some mail from the bank that had been overlooked in the junk mail. Anxiety came over me when I saw 3 identical extremely thin envelopes from the bank amidst a pile of unsorted junk mail. I didn't want to destroy the content feelings I'd managed to find by examining the contents of the envelopes, but I did. Yes, I was overdrawn! Now I'm not just broke, I'm over $100 in the negative and dropping by $5 daily Its the weekend, too late to call. Doesn't matter, I only have $30 in rebate checks plus $7 in my purse. Not enough. I cried over it a minute then decided I couldn't do anything about it now so I would put it out of my mind until Monday when I could talked to bank. In the meantime, I would continue in the contentment I'd found before this unexpected crisis. I had no control over my fate with the bank for the moment. So while waiting for Monday, I'll balance my feelings of helplessness by taking charge of what I can control, by doing something productive and proactive. I'll lessen some of my negative feelings of anger and sadness by surrounding myself with things that bring gladness and cheer. So for the body, I made myself glass of homemade cranberry juice and a fiber bar. For the spirit I lit my scented candle and tuned into a Christmas movie. For the mind, I began working on my website design. I was up all night, but not for worrying about finances. I was up successfully finalizing the style of my websites. For the first time I'd been able to maintain focus and control my ADHD brain long enough to decipher all the code for the designs I desired to implement. Saturday afternoon, I was still working when the doorbell rang. It was my step dad! I'd totally forgotten about the possibility of his arrival for the weekend. Calling my disconnected ATT phone, he'd been unable to reach me so he just came on. It was a pleasant surprise, but my house was in chaos. God bless him, for not making me feel worse for not being prepared. Remember...I'm out of toilet paper... I had to send him right back out to get it! But never mind my lack of cheer, he brought all the Christmas cheer with him, beginning with a silver flask of Coquito ..... That's like a Puerta Rican egg nog. He gave me the greatest gift I've received in years. TIME. Over the past few years, with diminished body and mind, my greatest loss has been the attention of others. Unable to drive or be mobile in many ways I've felt left out the social loop. My contacts have been just curbside service for trips to the grocery, doctors or church. No one crosses my threshold to actually visit anymore. My identity has become lost in my illness. People do for me but not with me. But when my step dad came Saturday, he came to visit ME! Well, I'm blessed to have a father who actually shares many of the same interests, ie computers and the internet. We're willing to listen to each others techie talk. He let me show off all the web development accomplishments I'd been up all night working on.
Monday he accompanied me to the bank to discuss my error with the manager and get me out the red. Afterward, he spent the remainder of the day and all night on some much needed home repairs. All year I've been trying to find someone to do these simple repairs and assemble my bathroom spacesaver shelf, I purchased it for myself last Christmas, but my son was unsuccessful at assembly. I thought for lack of proper tools and experience. Turns out it was poorly fitted flimsy parts, yet my stepdad worked all night trying to make the best out them before deciding it was better to return the wobbly result. My point is not the shelf, but the patience, the time that my step dad gave in his efforts to give me my desire. That was the real gift. I will forever remember how we stayed up all night in the floor frustrated by that 'dat blamed' shelf. I will forever appreciate my step dad's willingness to waste his time...for ME.
Posted by Musings of a Lupus Survivor! Monday, December 22, 2008 at 1:38 AM 0 comments Labels: anger, anxiety, family, financial, giving, holiday, loneliness, love, memories, time Links to this post
St. Nicholas was a real person — not a fairy, not someone who's flying through the sky with reindeer, but an actual person who lived and worked and died and had a full life. He had a Christian life because he was actually a bishop, a pastor.Jim Rosenthal visits churches to help spread the Saint Nicholas message. READ MORE »
11 On coming to the house, they saw the child with his mother Mary, and they bowed down and worshiped him. Then they opened their treasures and presented him with gifts of gold, frankincense and myrrh. Matthew 2:11 (Today's New International Version)
He was dressed all in fur, from his head to his foot, And his clothes were all tarnished with ashes and soot; A bundle of toys he had flung on his back, And he looked like a peddler just opening his pack. His eyes—how they twinkled! his dimples how merry! His cheeks were like roses, his nose like a cherry! His droll little mouth was drawn up like a bow, And the beard of his chin was as white as the snow; The stump of a pipe he held tight in his teeth, And the smoke it encircled his head like a wreath; He had a broad face and a little round belly, That shook, when he laughed like a bowlful of jelly. He was chubby and plump, a right jolly old elf. . . .
Posted by Musings of a Lupus Survivor! Sunday, December 21, 2008 at 4:38 PM 1 comments Labels: holiday, pictures Links to this post